Assessing the Impact of Applications of Digital Health Records on Alzheimer's Disease Research: Workshop Summary


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On July 20, 2015, the IOM’s Forum on Neuroscience and Nervous System Disorders held a public session at the 2015 Alzheimer’s Association International Conference in Washington, DC, to assess the impact of DHRs on Alzheimer’s disease (AD) research. AD is the most common cause of dementia in older adults. An estimated 46.8 million people worldwide are currently living with dementia, and the prevalence is expected to double every year for the next 20 years. Given the few therapies currently available to treat the symptoms of AD, compared to other central nervous system disorders, this session explored how DHRs may be used to help improve clinical trial design and methodology for AD research. The session brought together an international group of experts in translational, epidemiological, and health services research along with an ethicist and representative of a big data analytics company. While there are a number of potential uses of DHRs, these speakers, along with other session participants, discussed some of the currently available DHR databases that are being mined to better understand the progression of AD and design more effective clinical trials.

To view the meeting agenda and presentations, please click here.