Publication

Patients Charting the Course: Citizen Engagement in the Learning Health System - Workshop Summary


Released:

Note: Proceedings contain the opinion of the presenters, but do NOT reflect the conclusions of the Health and Medicine Division or the National Academies. Learn more about the differences between Reports and Proceedings.

As past, current, or future patients, the public should be the health care system’s unwavering focus and serve as change agents in its care. Taking this into account, the quality of health care should be judged not only by whether clinical decisions are informed by the best available scientific evidence, but also by whether care is tailored to a patient’s individual needs and perspectives. However, too often it is provider preference and convenience, rather than those of the patient, that drive what care is delivered.

As part of its Learning Health System series of workshops, the Roundtable on Value & Science-Driven Health Care hosted a workshop to assess the prospects for improving health and lowering costs by advancing patient involvement in the elements of a learning health system. This publication of the discussions, Patients Charting the Course: Citizen Engagement and the Learning Health System, underscores the centrality of communication strategies that account for and engage individual perspectives, needs, preferences, understanding, and support necessary to mobilize change.