Monitoring HIV Care in the United States: A Strategy for Generating National Estimates of HIV Care and Coverage


Report at a Glance

Approximately 1.2 million people in the United States live with HIV, and the number grows each year. In July 2010, the federal government released the National HIV/AIDS Strategy (NHAS), aimed at reducing HIV transmission, increasing access to care, improving health outcomes, and reducing health disparities for people living with HIV. NHAS is designed to build on Affordable Care Act provisions that will increase access to health insurance for people with HIV.

A critical part of federal efforts will be to accurately monitor the scope of the HIV/AIDS epidemic and the availability and success of treatment and prevention programs. For help in structuring its plans, the White House Office of National AIDS Policy asked the IOM to prepare two reports – the first was released in March 2012 – on monitoring HIV care in the U.S.

Data collected from a nationally representative sample of people with HIV can be used to help monitor the effect of the ACA on health care coverage and utilization. Monitoring will provide an enhanced means of assessing the effect of the NHAS and the ACA on care received by people with HIV – knowledge that can inform future planning and guide potential redistribution of resources to improve the efficiency and quality of care and reduce health disparities.