Improving Access to and Equity of Care for People with Serious Illness: A Workshop

When: April 4, 2019 (8:00 AM Eastern)
Where: Keck Center • 500 Fifth St. NW, Washington, DC 20001

Topics Aging, Diseases, Health Services, Coverage, and Access, Public Health
Activity: Roundtable on Quality Care for People with Serious Illness
Boards: Board on Health Care Services, Board on Health Sciences Policy

Webcast viewers, please feel free to submit any questions over Twitter using #SeriousIllnessCareNASEM and the word “QUESTION” at the beginning. Questions will be answered live throughout the meeting, as time allows.

An ad hoc committee will plan and host a one-day workshop whose agenda will examine access to and equity of care for people with serious illness. The workshop will feature invited presentations and panel discussions on topics that may include:

  • Barriers that impede access to care for serious illness (e.g., advance care planning, palliative care, and hospice) among vulnerable populations and strategies to address those barriers 
  • Strategies to build trust and effectively engage patients, families, and caregivers in diverse cultural, ethnic, racial and socioeconomic environments, in order to communicate with patients and families in a culturally competent manner regarding expectations and values related to end-of-life care, and to ensure that treatment is aligned with preferences
  • Approaches to enhancing the diversity of the workforce providing care to people with serious illness
  • Models of care delivery that currently serve vulnerable populations with serious illness, including public-private partnerships and community-level interventions such as use of community health coaches for peer-to-peer interventions, and partnering with faith-based organizations
  • Research gaps and key questions for further research

The planning committee will develop the agenda for the workshop, select speakers and discussants, and moderate the discussions. A proceedings of the presentations and discussions at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.


Planning Committee Members

Darci Graves, M.P.P. (Co-chair), Center for Medicare & Medicaid Services

Peggy Maguire. J.D. (Co-chair), Cambia Health Foundation

Kimberly D. Acquaviva, Ph.D., M.S.W., CSE, The George Washington University School of Nursing

Robert A. Bergamini, M.D., Mercy Clinic Children's Cancer and Representing the Supportive Care Coalition

Shonta Chambers, M.S.W., Patient Advocate Foundation

Marshall Chin, M.D., M.P.H., Department of Medicine, University of Chicago

Ziad R. Haydar, M.D., M.B.A., Ascension Health

Haiden Huskamp, Ph.D., Harvard Medical School

Kimberly Sherell Johnson, M.D., Duke University School of Medicine

Diane E. Meier, M.D., FACP, Icahn School of Medicine at Mount Sinai

Thomas M. Priselac, M.P.H., Cedars-Sinai Health System

JoAnne Reifsnyder, Ph.D., RN, FAAN, Genesis Healthcare and Representing the Hospice and Palliative Nurses Association

Susan Elizabeth Wang, M.D., Southern California Permanente Medical Group Kaiser Permanente




Confirmed Speakers and Moderators

Nadine Barrett, PhD, Duke University and Duke Cancer Institute

Pat Bomba, MD, Excellus Blue Cross Blue Shield 

Lori Bishop, MHA, BSN, RN, CHPN, National Hospice and Palliative

Shonta Chambers, MSW, Patient Advocate Foundation

Alice Chen, MD, San Francisco Health Network, UCSF

Sandy Chen Stokes, Chinese American Coalition for Compassionate Care

Marshall Chin, MD, MPH, UChicago Medicine

Steve Clauser, PhD, MPA, PCORI

Daniel Dawes, Alliance for Strong Families and Communities

Sarah Downer, Harvard Law School

Sister Anne Francioni, Whole Kids Outreach

Darci Graves, CMS Office of Minority Health

Kimberly Johnson, MD, Duke Cancer Institute

Bridgette Hempstead, Cierra Sisters

Edward Machtinger, MD, UC San Francisco

Peggy Maguire, JD, Cambia Health Solutions

Liz Margolies, LCSW, National LGBT Cancer Network

Adán Merecias, CHW, Familias en Acción

Diane Rowland, ScD, The Henry J. Kaiser Family Foundation

Justin Sanders, MD, Ariadne Labs

Andy Slavitt, MD, Town Hall Ventures and Former CMS Administrator

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