The National Academies of Sciences, Engineering and Medicine

Consensus Study

Human Gene Editing: Scientific, Medical, and Ethical Considerations

With the conclusion of last December's International Summit on Human Gene Editing, the second component of the Human Gene Editing Initiative is now under way: a comprehensive study of the scientific underpinnings of human gene-editing technologies, their potential use in biomedical research and medicine -- including human germline editing -- and the clinical, ethical, legal, and social implications of their use. 

This study is being conducted by a multidisciplinary committee of experts, which began its information-gathering process at the summit. Over the next year, it will perform its own independent and in-depth review of the science and policy of human gene editing by reviewing the literature and holding data-gathering meetings in the U.S. and abroad to solicit broad input from researchers, clinicians, policymakers, and the public. The committee will also monitor in real-time the latest scientific achievements of importance in this rapidly developing field. Finally, while informed by the statement issued by the organizing committee for the international summit, the study committee will have broad discretion to arrive at its own findings and conclusions, which will be released in a peer-reviewed consensus report. Expected to be completed in late 2016, the report will represent the official views of NAS and NAM.   

More about the study | Info for public meetings | Answers to frequently asked questions 

Public Event

The consensus committee hosted a public meeting in Paris, France on April 29, 2016, that focused on the principles underlying human gene editing governance and policy.  

Videos from the event are now available for viewing.

Recent Updates

Now Available: Slides and Videos from the April Meeting in Paris
See the presentation slides and watch the recorded videos

Updated Agendas Now Available
An updated agenda for the committee meeting has been posted for the April 29 public meeting in Paris. This event will be held one day after a workshop on the current scientific activities and regulatory landscape for human gene editing in the European Union, organized by the Federation of European Academies of Medicine (FEAM). Both meetings will be held at the French National Academy of Medicine. The agenda for the FEAM workshop on April 28 is also now available.

Now Available: Slides and Videos from the February Meeting in DC
See the presentation slides and watch the recorded videos


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